Researchers at the University of Derby would like to invite people to take part in an interview study to explore the experiences of family caregivers of people with ME/CFS.
The study is being supervised by health psychologist Dr Gulcan Garip and carried out by Sarah Catchpole, a postgraduate student in health psychology.
‘We know that ME/CFS is a serious and debilitating neuro-immune disease that can have a profound impact on the lives of people affected and their families.
“Very little is known about how family caregivers cope with caring for someone with ME/CFS and what support and information they need. This study aims to find out more about caregivers’ experiences so that they can be given the help they need to maintain their own wellbeing as they care for their family member.”
The researchers are looking for English-speaking people living in the UK, who are 18 or over. They should live with and support someone aged 18 to 65 with a medical diagnosis of CFS or ME. To be eligible you should be providing voluntary (unpaid) care for them that may include emotional support (for example, regularly listening and giving reassurance and encouragement) and help with physical or practical tasks.
The interviews may take up to an hour and a half. They will involve talking about your experiences as an informal caregiver – including how these experiences may affect your life and how you manage day-to-day supporting someone with this condition. You will be asked to provide some personal information for the study, including your age, employment status, relationship to the person you support and some brief medical information about their health.
The interview can be carried out by Skype or telephone at a convenient time for you. It will be recorded, transcribed and analysed and used as part of a research project in health psychology at the University of Derby. Anonymous verbatim quotes may be used in the report and might therefore appear in any dissemination of the research (for example, in a journal or conference poster).
Participation is voluntary and you can decide to withdraw any time up to two weeks after your interview. No identifiable information will be collected as you will be given a pseudonym before taking part. Any other names you may use in the interview will also be replaced. Any information you provide will be handled in accordance with the Data Protection Act 1998.
If you are interested in taking part or would like more information, please email Sarah at:email@example.com
from ME Association