Saturday, 24 June 2017

Unlock Your Imagination Using Specific Crystals

Blue Pietersite

Unlock your imagination to improve your life. Did you know that using specific third eye chakra and sacral chakra stones can help to stimulate your imagination? Find out how.



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The NICE guideline saga: how we got to where we are | 24 June 2017

Last week ME/CFS stakeholders – including the ME Association – received a letter from NICE informing us that the consultation period for consideration of a review of the current NICE guideline would take place from Monday, 10 July until Friday, 21 July. NICE will let us know what will actually be required of us during this period nearer the time.

While we consider what it is we want from this guideline review and what further evidence we can provide that might support our case, we thought it might be useful to provide some background and hear from Dr Charles Shepherd about this latest development.

Like some (but not all) of the UK ME/CFS charities, the ME Association has always regarded the 2007 NICE guideline as being unfit for purpose – but it does have a few positive points.

Over the past ten years the ME Association has made several attempts to try and get a revision of the guideline – but without any success, until possibly now.

NICE had decided to park the guideline on its static list back in September 2013, prompting us to submit a comprehensive critique which dealt with a large number of reasons why this decision was wrong. At the same time the Forward ME group of ME/CFS charities, under the chairmanship of the Countess of Mar, decided to try a more joined up approach.

In 2014 Forward ME held meetings and exchanged correspondence with Professor Mark Baker at NICE – who accepted that there was a need to look at the guideline again.

“…we are stuck with a NICE guideline on ME/CFS that patients do not want, the ME Association regards as completely unfit for purpose, and a guideline which NICE (at long last) now accepts is no longer doing the job it should.” Dr Charles Shepherd July, 2014.

But Professor Baker then ‘passed the parcel’ to NHS England – who had assumed the responsibility for ordering a NICE guideline revision. In 2015, the Forward ME Group met (and had correspondence with) Dr Martin McShane, Director of Long Term Conditions at NHS England, to try and achieve a change of mind.

There is some interesting internal correspondence from 2016 involving Professor Baker at NICE and Dr McShane at NHS England, which was clearly not intended for public consumption. This was obtained by three Freedom of Information (FOI) requests from a Mr Ellis.

The FOIs suggested for example that while NICE would take more notice of UK medical opinion, it would also review overseas evidence such as the influential report from the Institute of Medicine in America. However, it was also revealed that Professor Mark Baker was of the opinion that there was no evidence that GET was responsible for making some people’s health worse.

Commenting on the current prospects for a review of the NICE guideline, Dr Shepherd said:

“I can only assume that a combination of continual pressure at a charity and parliamentary level has forced a change of mind at NHS England and at NICE – resulting in the current situation.”

“As has already been pointed out, NICE announced some time ago that they would be reviewing all the relevant evidence to see if a review of the NICE guideline is now needed.”

“It’s important to note that NICE are not really interested in research into causation of ME/CFS. Unfortunately, they only provide guidance to doctors on clinical assessment, diagnosis and management of illnesses.”

“So they only want to see and review research evidence and clinical trial evidence that relates to the above three topics, and there isn’t a huge amount of new high quality papers to put in front of them.”

“The Forward ME Group and the Countess of Mar have, however, been in very regular contact with Professor Baker and have been forwarding what we feel is important evidence that needs to be taken into consideration:

For example, the Wilshire et al. re-analysis of PACE trial data, the ME Association ‘patient-evidence’ report on CBT, GET and Pacing, the Rituximab trial papers and the new paediatric primer (co-authored by MEA paediatric adviser Dr Nigel Speight).”

“The most recent development is the announcement that stakeholders in the NICE guideline on ME/CFS are being consulted in July and the ME Association will submit a further response inline with what we are being asked.”

“This evidence gathering process is supposed to be terminating around September or October – after which NICE will announce if a guideline revision will take place. My guess, and this is purely guesswork, is that they will decide to carry out a review and if this does take place, it will presumably start in early 2018. How long it will take is debatable. We could have a result in 2018, or it could take till 2019.”

“If NICE decide that a review is not necessary, we are back to square one and will once again be banging our heads against a very thick wall.”

Dr Charles Shepherd, ME Association Medical Adviser.



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Tanzanite Stimulates Heightened Spiritual Growth

Tanzanite

Tanzanite stones embody the healing energy of the violet flame. These high vibration transformation crystals aid metaphysical healing, boost your spiritual growth and help you to develop psychic powers.



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The Strophalos, or Hecate’s wheel is an ancient Greek symbol,...



The Strophalos, or Hecate’s wheel is an ancient Greek symbol, and is an emblem of the initiatory lunar Goddess Hecate and her triple aspect (maiden, mother, crone).HEKATE (Hecate) was the goddess of magic, witchcraft, the night, moon, ghosts. #hecate #strophalos #goddess #divine #divinefeminine #lunargoddess #priestess #purplelotusspiritualhealing #priestessmiami #spiritual #spiritguide #spirituality #sacredfeminine #sacredwombcenter #spiritualhealer #spiritualgrowth #spiritualhealing #spiritualhealingmiami #miami #miamilife #moonmother #moonmothermiami #om #namaste



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Peach moonstone heals the heart by bringing the Goddess love...



Peach moonstone heals the heart by bringing the Goddess love into your life and heart. It promotes spiritual and psychic opening as heart and emotional healing. This stone facilitates the discovery of your place in the universal plan and helps you discover the Goddess within. Peach moonstone provides you with a gentle clearing of heart scars and traumas from this life and past lives. It promotes acceptance and openness, learning to trust yourself and others. This is an all healing energy especially for women and is an emotional support for intuitive or sensitive children. I have available to purchase DM for more info!! #peachmoonstone #moonstone #goddess #divine #divinefeminine #metaphysicalhealing #metaphysicalpractitioner #metaphysical #crystalhealing #crystals #miami #miamihealing #miamilife #sacredfeminine #sacredwombcenter #priestess #purplelotusspiritualhealing #om #namaste



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You don’t want to miss! Join me this Sunday as we eat...



You don’t want to miss! Join me this Sunday as we eat drink, meditate and hold space as we give gratitude, share what is beginning to bloom for us and as we connect to the power of the sun to aid is in empowering, brightening and bringing light to that which we want to manifest! Contact me for more info! @crazy4candles @consciousorgonite #miamieventsgroup #miamievents #summersolstice #summersolsticecelebration #fire #sun #manifestation #manifest #bloom #lithia #lightworker #spiritual #spirituality #spiritualgrowth #spiritualhealer #spiritualhealing #spiritualhealingmiami #miami #meditate #miamilife #miamihealing #miamievents #spiritguide #purplelotusspiritualhealing #reiki #energyhealing #metaphysicalhealing #metaphysicalpractitioner #metaphysical #om #namaste



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The divine is in all things! Blessed Saturday! #affirmation...



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‘Very helpful and constructive meeting’ with RCGP representatives at House of Lords | 24 June 2017

This is a brief update following the recent meeting between MEA medical adviser, Dr Charles Shepherd, and representatives from the Royal College of General Practitioners at the House of Lords on Thursday 22 June 2017.

“Firstly, could I thank everyone who posted feedback on social media, or sent in emails to the MEA, regarding what they wanted to see discussed at this important meeting.”

“This follows on from a previous meeting on medical education with Professor Ian Curran from the General Medical Council.”

“We had a very helpful and constructive meeting with two very senior representatives from the RCGP on Thursday this week.”

“The presentations and discussion session covered a wide range of topics relating to education, clinical assessment, diagnosis and management of ME/CFS.”

“This was followed up by agreeing a number of action points relating to improving the continuing professional development and education of GPs about the diagnosis and all aspects of management ME/CFS.”

“Detailed Minutes for the meeting are being prepared – so I will just produce a bullet point list of topics that were discussed on Thursday:

  • Evidence from MEA website surveys covering GP knowledge and understanding of ME/CFS and the time taken/long delays for people to get a firm diagnosis of ME/CFS
  • The problems facing GPs in relation to consultation time and not being able to be experts in every condition they deal with
  • ME/CFS is not ‘all in the mind’ and is not a psychiatric illness – including historical reasons behind this inaccurate labelling
  • Specific issues relating to children and adolescents
  • Issues relating to people with severe ME/CFS who cannot get to a GP surgery and the refusal of some GPs to make home visits to people who are housebound
  • The current state of GP education on ME/CFS from lectures, tutorials, online learning modules etc and coverage of ME/CFS in GP examinations – both theory and clinical skills assessments
  • The importance of making an early and accurate diagnosis of ME/CFS – so that appropriate management can begin as soon as possible
  • Timescale for making a diagnosis – as set out in the 2002 Chief Medical Officer’s Working Group report.  Diagnosis should be seriously considered when symptoms persist for 3 months in children and 4 months in adults and the diagnostic process should normally be completed within six months of the onset of symptoms
  • The differential diagnosis of ME/CFS and the research evidence from Newcastle indicating that a significant proportion of people are being misdiagnosed as having ME/CFS – even when they are referred to specialist referral centres
  • It is not appropriate for GPs to refuse to make a diagnosis because they do not want to label someone as having ME/CFS
  • Co-morbid conditions (e.g. irritable bowel symptoms) and conditions with symptoms that overlap with ME/CFS (e.g. post polio syndrome, which was raised by the RCGP)
  • How patients ought to be managed in primary care – activity management, symptom relief for pain etc.
  • Availability (and lack of availability) of specialist referral services throughout the UK – with particular reference to the almost complete lack of NHS referral services in Wales
  • Drug sensitivities in ME/CFS and the need for regular medication reviews, especially when several drugs are being prescribed
  • Issues surrounding good professional conduct and complaints. It was pointed out that the GMC is there to protect patients not doctors!  Patients should complain if there are good grounds to do so and they should not be removed from a GP list because they have made a complaint.
  • Controversies surrounding the PACE trial, CBT and GET and the NICE guideline on ME/CFS
“The MEA also provided copies of various key items of literature:
  • The MEA purple book
  • Early and Accurate Diagnosis leaflet
  • Summary of the report on patient evidence relating to CBT, GET and Pacing
Dr Charles Shepherd
Hon Medical Adviser, MEA


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