Thursday 31 January 2019

Blodite Meaning & Use: Helps You Let Go Of Oudated Beliefs

Blodite

Blodite also called Bloedite is a rare sodium stone that helps you let go of beliefs that are holding you back. Helps with developing intuition.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/blodite.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

#crystals #crystal #healing

Dumortierite Meaning & Use Aids Patience, Intellectual & Psychic Gifts

Dumortierite

Dumortierite enhances your intellect and amplifies and boosts psychic abilities. Learn how it teaches you to stand up for yourself, promotes patience and aids you to take control of your own life.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/dumortierite.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

#crystals #crystal #healing

Fundraising: A welcome return to Lee Stammers and his ‘FeBLUEary’ campaign | 31 January 2019

 

Helen Hyland, Fundraising Manager, ME Association.

We’re thrilled to welcome back Lee Stammers for a repeat of his highly successful Fe’BLUE’ary social media campaign. Lee is no stranger to the ME Association and indeed his evocative artwork has fronted our own fundraising campaigns in recent years. It is said that a picture is worth 10,000 words. That is certainly the case with Lee’s artwork, as you’ll see from his self-portrait, describing how his illness makes him feel.

  • Support Lee’s campaign and visit his JustGiving page for regular updates!
  • We’ll also be following his progress and sharing his story via our Facebook page…

Lee will be dyeing his hair BLUE for the full 28 days of the month of February. And, as if a daft hairstyle wasn’t enough, each and every day through the month, he will also be posting images across social media and telling the story of his over 20 year struggle with M.E. Lee is a man on a mission – to increase awareness and understanding for this cruel illness through art.

20 year struggle with M.E.

How M.E. makes me feel by Lee Stammers.

Lee has lived his whole adult life with the M.E. monster. And it all started with what he thought was a long acting virus making him rundown and having severe kidney pain when he was 16 or 17.

Thinking like a typical teenager and believing himself to be indestructible, he pushed himself hard to finish his A levels in his final year at college.

It was a real struggle – especially when a close family friend drowned near to Lee’s home – but somehow he managed to hold everything together to get the grades he needed for university.

Lee went on to study Sports Science at university and continued trying to act like every other ‘normal’ 19 year old – throwing himself into sport, socialising, and studying.

He kept this up for two whole years, but final year knocked him sideways. His symptoms took hold and his life changed.

Lee says, “Sport became impossible because I would get muscle cramps after just 2 mins of activity; my muscles were weak and lethargic; and my legs hurt badly – it felt like growing pains. My head was permanently foggy, with a heaviness that was both annoying, and very painful. It is hard to describe, but it was (and is) like carrying a weight around in your head, something that smothers and presses down on your brain.”

Lee got his degree, but he hasn’t felt well again since then. That was over 20 years ago. At the age of 21, Lee continued his battle to be a normal young man. And continued losing! He spent more and more time at home with his parents: frustration with the fatigue, headaches, and muscle pain turned into depression and anxiety. He lost a job and found it impossible to see friends or take part in society. He was totally isolated – with just the care and love of his family keeping him going. He couldn’t even watch TV as staring at a screen for more than 30 minutes each day hurt too much.

Diagnosis was a long time coming…

Government guidance recommends strongly that people should receive a diagnosis of M.E. within 4 months of onset of symptoms. But sadly Lee, like many other people with M.E., didn’t receive a diagnosis until he was 24. And that was only at the instigation of Lee’s marvellous crusading mother who had done her own research and ‘suggested’ it to their GP. Lee was finally referred to an M.E. specialist.

The M.E. specialist advised that Lee would not be able to work and probably wouldn’t begin to feel better for at least another 3 years. This was a blow.  Lee was prescribed a cocktail of tricyclic antidepressants (which are also believed to help reduce pain and sleep disturbance) and ordered to make drastic lifestyle changes to limit the impact of the outside world on his body and mind.

This might seem extreme, but the specialist likened treating M.E. to getting rid of a computer virus. Essentially he prescribed a total shutdown and slow reboot to every system.

So, at the grand old age of 24, Lee found himself rebuilding his life: addressing his sleep difficulties by implementing a strict schedule of sleeping and waking; and paring the exercise right down to barely nothing. Understandably, for a young man of his age, he struggled with sitting so still for so long doing nothing and his mental health suffered as he became increasingly angry and resentful.

Watercolour Challenge

This evocative painting is called ‘Mind-FULL’. 

Lee says that he was always a driven man. His inability to stop is probably one of the reasons his illness took such a hold in the first place.

He cast around for alternative means of stimulation and became hooked on a TV show called Watercolour Challenge.

Each week, the show featured three amateur artists, each painting the same landscape, in watercolour, but each interpreting it in their own unique way.

This weekly daytime show because one of Lee’s few luxuries in life. He began to pick up pencils and brushes himself, and gradually he found an artistic outlet for all his anxiety, frustration and pain.

Twenty years later, Lee tells us that he thinks he’s developed ‘some’ talent. He says “It is the thing I go to most and often the only thing that stops me feeling totally unproductive and worthless”.

Fundraising manager for the ME Association, Helen Hyland, says “We often hear how peoples’ lives have turned out so differently because of their M.E. People turn to writing or art to find some relief and discover that, like Lee, they have a real talent for it. We are so glad that art remains a major influence in Lee’s life, because we are all so much the richer because of it.”

It’s not surprising that Lee struggles to put into words the pain and muddlement that his M.E. causes. It’s not at all easy to describe.


Lee feels strongly that it is important to educate people about the disease. He now uses his art to create and express all that he feels and to show people what having M.E. is like.

What he lacks in words, he makes up with his rare and special gift – of being able to help us visualise what he is feeling.

We look forward to learning more of Lee’s 20 year struggle with ME and to seeing further watercolour gems by Lee through the month of February.

If you would like to follow his progress, and indeed show your support for his perseverance and keen talent, then please follow this link to his fundraising page on JustGiving.


The ME Association

Please help us continue our work

If you have found this information helpful, then please donate – whatever you can afford – to help us continue with our work to make the UK a better place for people with M.E. Just click the button below to visit our JustGiving page:

Or why not join the ME Association as a member and become a part of our growing community? For a monthly (or annual) payment you will not only be helping to keep us doing what we do best, but will receive our exclusive ME Essential magazine.


ME Association Registered Charity Number 801279


 



from ME Association
https://www.meassociation.org.uk/2019/01/fundraising-lee-stammers-feblueary-campaign-31-january-2019/

from https://www.meassociation.org.uk

#cfsme

Photo | Spiritual





from Spiritual Seeker 77
http://spiritualseeker77.tumblr.com/post/182444665289

from http://spiritualseeker77.tumblr.com/

#spiritual

Wednesday 30 January 2019

Dioptase Meaning & Use Aids Compassion, Forgiveness & Release of Karma

Dioptase

Feeling Stuck? Dioptase embodies the green ray and vibrates within the higher heart and heart chakra. Activates past life memories yet encourages living in the moment. Release karma and enjoy life.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/dioptase.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

#crystals #crystal #healing

Photo | Spiritual





from Spiritual Seeker 77
http://spiritualseeker77.tumblr.com/post/182425344996

from http://spiritualseeker77.tumblr.com/

#spiritual

Photo | Spiritual





from Spiritual Seeker 77
http://spiritualseeker77.tumblr.com/post/182425338161

from http://spiritualseeker77.tumblr.com/

#spiritual

Photo | Spiritual





from Spiritual Seeker 77
http://spiritualseeker77.tumblr.com/post/182425322166

from http://spiritualseeker77.tumblr.com/

#spiritual

Photo | Spiritual





from Spiritual Seeker 77
http://spiritualseeker77.tumblr.com/post/182425317011

from http://spiritualseeker77.tumblr.com/

#spiritual

Tuesday 29 January 2019

Dream Quartz Meaning & Use: Boosts Lucid Dreaming & Prophetic Dreams

Dream Quartz

Dream Quartz aids the recall of dreams & stimulates lucid dreaming. They assist weight loss and peaceful sleep and may boost psychic abilities such as the gifts of prophesy & telepathy. Useful healing stones aka Epidote In Quartz.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/dream-quartz.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

#crystals #crystal #healing

MEA Summary Review: US study of onset patterns and course of illness in ME/CFS | 29 January 2019

 

Charlotte Stephens, Research Correspondent, ME Association.

Epidemiology = The study of the incidence (how many), distribution (who, when and where) and risk factors relating to a particular health condition.

Dr Lily Chu. Source: Solve ME/CFS Initiative

Epidemiology studies are few and far between in the field of ME/CFS.

They are important as they can tell us how many people in a given population are likely to have the disease or are likely to develop it.

They can help to identify patterns which may give useful clues for studying the cause of ME/CFS and could help with diagnosis and treatment.

Their findings can also be used to help shape policy decisions in evidence-based practice (for example, the NICE clinical guideline) and demonstrate the impact of a disease to other official bodies and organisations.

This new epidemiology study from Dr Lily Chu (with help from Prof. Jose Montoya), describes the results from 150 respondents to a survey who met the Fukuda criteria for ME/CFS.

The study was investigating the factors that led to the onset of ME/CFS and asked about illness experience. It is only available currently in abstract form, but we will update this review when the full paper is available should there be any other interesting features.

Main Findings  

  • The most common “illness triggers” that led to ME/CFS were:
  1. Infection (64%)
  2. Stressful Incidents (39%)
  3. Exposure to environmental toxins (20%)
  • For 38% of those surveyed, it took over 6 months from the onset of initial symptoms to the development of the full set of symptoms associated with ME/CFS.

Could it be that this delayed development is a result of continual ‘pushing’ through initial warning signs and bad advice? Would they still have gone on to develop ME/CFS had they, for example, stopped and rested? This would be worth investigating to possibly help prevent more people developing ME/CFS.

  • Pregnancy, menopause and menstruation exacerbate many women’s symptoms.

This might suggest that changes in hormone levels play a role in the perpetuation of the illness. Changes in hormones can also have an effect on the immune system, which may explain the increase in symptoms.

  • Fatigue-related function was not associated with duration of illness or age.

This means that ME/CFS does not necessarily get worse or better with time and the impact it has is no greater or lesser depending on what age you are.

  • 97% of those surveyed suffered from at least one other illness

    Anxiety, depression, fibromyalgia, irritable bowel syndrome and migraine headaches being the most commonly diagnosed.This indicates that ME/CFS is a multi-factorial illness, affecting many different systems in the body.

  • 47% of those surveyed were unable to work.

This would be a useful statistic when calculating the economic burden of an illness. It also shows the impact of ME/CFS on function.

  • Only 4% felt their condition was improving steadily. The majority of people (57%) described a fluctuating course of illness.

This emphasises the need for treatment, as it shows that most people do not recover from ME/CFS on their own. It would also be worth investigating the 4% that felt they were improving, to see what was different between them and the other 96% of people surveyed.

  • 13% of those surveyed had at least one other relative with ME/CFS and 27% reported having a relative with undiagnosed chronic fatigue.

This could indicate a genetic component to ME/CFS and that it may be heritable.

The ME Association

Please help us continue our work

Please donate – whatever you can afford – to help us continue with our work to make the UK a better place for people with M.E. Just click the button below to visit our JustGiving page:

Or why not join the ME Association as a member and become a part of our growing community? For a monthly (or annual) payment you will not only be helping to keep us doing what we do best, but will receive our exclusive ME Essential magazine.



from ME Association
https://www.meassociation.org.uk/2019/01/mea-summary-review-us-study-of-onset-patterns-and-course-of-illness-in-me-cfs-29-january-2019/

from https://www.meassociation.org.uk

#cfsme

Photo | Spiritual





from Spiritual Seeker 77
http://spiritualseeker77.tumblr.com/post/182393291996

from http://spiritualseeker77.tumblr.com/

#spiritual

Monday 28 January 2019

Aventurine Stones Meaning & Use: Increase Optimism & Self Confidence

Green Aventurine

Aventurine Stones increase your optimism for living, help to build self confidence. Read about healing properties & metaphysical attributes of various colors such as green, blue, white, red, peach or yellow Aventurine.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/aventurine-stones.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

#crystals #crystal #healing

Fundraising Feature: 14-year-old Tayla has a close-shave for M.E. | 28 January 2019

 

Helen Hyland, Fundraising Manager, ME Association.

What a transformation! Tayla Jones, aged just 14 years, is our very first fundraiser of the year.

Tayla had her head shaved for M.E. earlier this month because, she says “I grew up with a parent who has M.E. and it’s very difficult for me to watch my mum struggle with everyday things”.

Tayla wanted not just to raise funds, but to do her bit to make a real difference.

Thank you Tayla for being so brave. Not just in shaving your head, but also in sharing your story. I know just how hard it can be for children growing up in a family when a parent has M.E. You are an inspiration to us all. 

Tayla’s fundraising page is still open, if you’d like to show her your support.

And if one of your New Year’s Resolutions was to do some fundraising for M.E. in 2019, do please get in touch with Helen Hyland via phone (01280 838964) or email.

The ME Association

Please help us continue our work

If you have found this information helpful, then please donate – whatever you can afford – to help us continue with our work to make the UK a better place for people with M.E. Just click the button below to visit our JustGiving page:

Or why not join the ME Association as a member and become a part of our growing community? For a monthly (or annual) payment you will not only be helping to keep us doing what we do best, but will receive our exclusive ME Essential magazine.


ME Association Registered Charity Number 801279


 



from ME Association
https://www.meassociation.org.uk/2019/01/fundraising-feature-14-year-old-tayla-has-a-close-shave-for-m-e-28-january-2019/

from https://www.meassociation.org.uk

#cfsme

Sunday 27 January 2019

Learn To Unlock Your Imagination Using Specific Crystals

Natural Citrine

Unlock your imagination and improve your life, using specific third eye chakra and sacral chakra stones that help to stimulate your imagination. And combining these stones with the law of attraction is also helpful.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/unlock-your-imagination.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

#crystals #crystal #healing

Shattuckite Meaning & Use: Boost Psychic Gifts Mediumship & Channeling

Shattuckite

Shattuckite assists you to develop psychic communication gifts. Learn more about this potent psychic crystal, that boosts mediumship, channeling ability, automatic writing, intuition and clairvoyance or psychic visions.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/shattuckite.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

#crystals #crystal #healing

Photo | Spiritual





from Spiritual Seeker 77
http://spiritualseeker77.tumblr.com/post/182340277226

from http://spiritualseeker77.tumblr.com/

#spiritual

Saturday 26 January 2019

Use Quartz Crystals For Healing, Strong Amplification Properties

Chevron Amethyst

Quartz crystals are powerful stones that have potent metaphysical properties. Use them to create a strong healing result. They amplify their energy outwards and can be programmed for healing yourself and others.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/quartz-crystals.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

#crystals #crystal #healing

Tigers Eye Stone Meaning & Uses: Aids Harmonious Balanced Action

Tigers Eye Stone

Tigers eye stone has a calming, centering & grounding vibration. Like all golden stones they aid manifestation, enhance creativity and infuse you with confidence, brightness, optimism & discernment.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/tigers-eye-stone.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

#crystals #crystal #healing

Friday 25 January 2019

Abraham Hicks Books, Detailed Guides For Living Life On Purpose

Esther Hicks

Have you read the Abraham Hicks Books? These in-depth books talk about the Law of Attraction, and will help you to discover how to improve your life using the powerful concepts presented.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/abraham-hicks.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

#crystals #crystal #healing

Emerald Stones Meaning & Uses: Emit Green Ray Energy Of Abundant Love

Emerald Stone

Emerald stones are a green Beryl that emits the purest green ray energy for successful and abundant love. This May birthstone manifests loyalty and unconditional love in relationships.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/emerald-stones.html

from https://www.healing-crystals-for-you.com/healing-crystals-blog.html

#crystals #crystal #healing

Scottish Health Secretary pledges more support for people with ME | 25 January 2019

 

Press Association, Daily Mail, 24th January 2019.

Scotland’s health secretary Jeane Freeman has told ME sufferers their experiences matter to her.

Ms Freeman addressed the Public Petitions Committee at the Scottish Parliament on Thursday as it considered a petition calling for a review of the level of support available to people with the condition.

Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), can have a wide range of symptoms including muscle fatigue, pain and neurological symptoms.

According to Scotland’s chief medical officer Catherine Calderwood, however, almost half of the medical profession does not accept ME to be a real condition.

It is defined by the World Health Organisation (WHO) as being neurological but doubts have been raised by practitioners due to the difficulty in diagnosing it.

Ms Freeman said: “To people living with ME – I believe you. I believe that this disease is a life-limiting disease in terms of the quality of your life, I hear what you are saying to us and your experience does matter to me.

“In order to make progress, we have to recognise the position we’re starting from and that is one where there is clearly a lack of evidence, both around what causes ME and from that, how to treat ME.

“We need more research into this condition. The only way to build an evidence base which can inform treatment options and the development of service is by enhancing the research base.”

Ms Freeman said the Scottish Government has been developing a national action plan on neurological conditions over the past 18 months, working with partners and stakeholders including patients, carers and families.

The health secretary said that it is part of a “wide-ranging” five-year plan that has been welcomed by the neurological community in Scotland.

Ms Freeman said the Scottish Government and NHS Scotland accepts the WHO definition of ME and would urge practitioners in the country to operate on that basis.

She also indicated the decision taken by practitioners on patients cannot be overruled.

The ME Association

Please help us continue our work

Please donate – whatever you can afford – to help us continue with our work to make the UK a better place for people with M.E. Just click the button below to visit our JustGiving page:

Or why not join the ME Association as a member and become a part of our growing community? For a monthly (or annual) payment you will not only be helping to keep us doing what we do best, but will receive our exclusive ME Essential magazine.

 



from ME Association
https://www.meassociation.org.uk/2019/01/scottish-health-secretary-pledges-more-support-for-people-with-me-25-january-2019/

from https://www.meassociation.org.uk

#cfsme

Christians with ME celebrate debate on condition reaching parliament | 25 January 2019

 

Eno Adeogun, Premier, 24th January 2019.

Christian activists with Myalgic encephalomyelitis (ME) are praying a debate in parliament on Thursday about the treatment and funding of patients with the condition will bring about positive change.

The long-term illness leaves 75 per cent of those affected unable to work and 25 per cent housebound or bedridden. Tanya Marlow – a Christian with ME, told Premier many people do not understand what it’s like living with it.

“ME varies in severity but one thing that is core to everyone is that it’s like having a very low battery in your system that keeps on crashing very quickly and is not recharged properly,” she explained.

“At the very severe end, it is absolute hell and it means even light and sound [is] interpreted by the body as pain.

“You can’t move, you can’t speak, you can’t feed yourself and it is a life of darkness and pain for years and years.”

The NHS lists a number of specialist treatments for ME, which is also described as Chronic fatigue syndrome (CFS).

These include cognitive behavioural therapy (CBT), medication, diet and supplements, sleep, rest and relaxation.

Graded exercise therapy (GET) – is a structured exercise programme that aims to gradually increase how long you can carry out a physical activity.

Marlow and other ME activists disagree with GET being offered in a treatment plan.

She claimed: “It’s just cruel – graded exercise therapy is like prescribing sugar for diabetics. It’s harming patients everywhere.”

Marlow described the debate MPs will have about ME as a “victory”.

She also said it was an “affirmation of the patient voice after being silenced for so long by a very powerful psychiatric lobby that’s been saying that ME is caused by exercise phobia and is basically a behavioural disorder that can be cured by graded exercise and positive thinking”.

She said she hoped there would be agreement on the two proposals in the motion that states Britain should invest in biomedical research for ME and GET should be scrapped.

The ME Association

Please help us continue our work

Please donate – whatever you can afford – to help us continue with our work to make the UK a better place for people with M.E. Just click the button below to visit our JustGiving page:

Or why not join the ME Association as a member and become a part of our growing community? For a monthly (or annual) payment you will not only be helping to keep us doing what we do best, but will receive our exclusive ME Essential magazine.

 

 



from ME Association
https://www.meassociation.org.uk/2019/01/christians-with-me-celebrate-debate-on-condition-reaching-parliament-25-january-2019/

from https://www.meassociation.org.uk

#cfsme

Schoolboy, 14, struck down by ME during a football match | 25 January 2019

 

Claudia Tanner, The i news, 24th January 2019.

Schoolboy, 14, struck down by ME during a football match – yet doctors dismissed his symptoms as him being a ‘lazy teenager’

Cai Onraet, who is now 19, was left housebound and suffering in agony and couldn’t go to school for two years.

  • Cai Onraet’s onset of ME was sudden when his legs went beneath him
  • He suffered fatigue, headaches, muscle pain, and flu-like symptoms
  • Schoolboy made good recovery but aged 19 still suffers brain fog
  • Calling for better awareness of ME among public and doctors

Sports mad Cai Onraet pictured right on the day he collapsed (Photo: Nikki Onraet)

Cai Onraet was always active and sports mad – he was captain of his school football team and played rugby every week. But he began to suffer some bizarre symptoms.

His lips swelled up and he developed a rash that worsened when he exercised or showered. It was so severe that his mother Nikki rushed him to A&E twice, but doctors were left baffled.

Then the 14-year-old collapsed suddenly while playing football. Cai told i: “My legs went beneath me and I fell to the ground. When I tried to stand I was only able to lift my legs a few inches, as though weights had been tied around my ankles.”

Over the coming weeks, he experienced all the classic signs of chronic fatigue syndrome (CFS), or myalgic encephalomyelitis (ME) as it’s also known. These included severe fatigue, headaches, muscle pain, flu-like symptoms and a sore throat.

“He ached all over and he could barely get out of bed,” said Nikki, an IT administrator, 50, from Gravesend, Kent. “He had problems sleeping but then when he did sleep it made no difference, he was so exhausted.”

She says she took her son to their GP several times but his illness was dismissed. “His aches were put down to growing pains,” she said. “And a couple of times we were told he was just being a typical lazy teenager who didn’t want to get out of bed.”

Read more at: Schoolboy, 14, struck down by ME during a football match

Call for more funding and better diagnosis and treatments

Cai is speaking out as MPs prepare to debate the treatment and funding of patients with ME in the House of Commons on 24 January. Campaigners want the Government to provide increased funding for biomedical research into the diagnosis and treatment of ME.

They are also pushing for health professionals to stop using GET and CBT as a treatment. They also want updated training of GPs and medical professionals to ensure they are equipped with clear guidance on diagnosis of ME.

Dr Charles Shepherd, the ME Association’s charity’s medical adviser, said: “Despite being recognised by the World Health Organisation as a neurological disease, and a report from the Chief Medical Officer of Health calling for more research and a network of hospital based clinics, many doctors still don’t know how to diagnose and manage ME/CFS and lack or research means that we still don’t have any effective forms of treatment.

“This is a completely unacceptable situation for a disease that is twice as common as multiple sclerosis and where a new report has estimated that it is costing the UK economy around £3.5 billion in lost taxes, healthcare and benefit costs.”

Read more at: Schoolboy, 14, struck down by ME during a football match

The ME Association

Please help us continue our work

Please donate – whatever you can afford – to help us continue with our work to make the UK a better place for people with M.E. Just click the button below to visit our JustGiving page:

Or why not join the ME Association as a member and become a part of our growing community? For a monthly (or annual) payment you will not only be helping to keep us doing what we do best, but will receive our exclusive ME Essential magazine.



from ME Association
https://www.meassociation.org.uk/2019/01/schoolboy-14-struck-down-by-me-during-a-football-match-25-january-2019/

from https://www.meassociation.org.uk

#cfsme

Parliamentary Debate: Kids being taken into care by medics who refuse to believe ME is real | 25 January 2019

 

Press Release, John Siddle, PR Manager, ME Association.

24th January 2019.

Children with the devastating illness ME face the threat of being taken into care because medics refuse to accept their disease is real, parliament was today told.

ME – myalgic encephalomyelitis – is a cruel disease affecting a quarter of a million people in the UK who are being “failed” in a “national disgrace”.

While classed as a neurological disease, the stigmatised condition is still considered wrongly by some health professionals to be psychological. It means that often patients struggle to get the support they so desperately need.

ME manifests as activity-induced muscle fatigue, post-exertional malaise, problems with cognitive function, widespread muscle pain, unrefreshing sleep and ongoing flu-like symptoms.

In the debate today – the first in 20 years on ME – the House of Commons was told how one in five children with the disease are being threatened with the prospect of being forced into care.

MP Carol Monaghan, who brought today’s motion, led calls for more funding for research and better medical training to help support patients.

She said: “There is currently no cure for ME and many with the condition experience inadequate care and support.

“But there are an estimated quarter of a million people in the UK suffering from ME, and currently we are letting these people down.

“The cause of the disease is unknown, but many patients report that it developed after a viral infection such as flu or glandular fever.

“Many adults cannot maintain employment or relationships with family and friends, while children frequently fall behind in school. The ignorance surrounding the condition makes it harder to access benefits with DWP assessors often deciding the sufferer is fit for work.”

Several quality of life research studies have shown that the level of disability in ME can be just as great than many other serious medical conditions, including cancer and multiple sclerosis.

While some people with ME do improve over the course of time, it is only a small minority that return to full normal health. And the disease is indiscriminate, affecting both sexes, all ages and all races.

Mrs Monaghan, (SNP, Glasgow North West) added:

“Some with severe ME spend their days in darkened rooms, unable even to watch TV or listen to music.  Even touch is intolerable. Many are tube fed. For these individuals, ME is a life sentence, but a life spent existing, not living.

“This condition is largely unknown because those affected are often hidden away. I commend the ME community for lobbying so successfully to ensure so many members are here today.

“Leading up to this debate, I have been asked repeatedly what I hope to achieve. Ultimately what I want, and what the ME community wants, is better treatment and care for those with ME.”

Child protection proceedings

The debate was told how one in five families caring for a child with the devastating disease ME have been referred for child protection proceedings.

The Commons told how an eight-year-old – Girl B – was almost taken from her family by social services after medics said her condition was psychological.

Mrs Monaghan continued: “B’s parents were warned that if they did not fully comply, child protection proceeding would be initiated. Social services specified graded exercise, despite being warned of the dangers. As a result, B deteriorated rapidly until she became wheelchair bound. “

Under threat of court action, the girl’s parents were then forced to take her to a children’s hospital and threatened with the prospect of their daughter being taken into foster care.

Mrs Monaghan continued: “B was in constant pain, unable to sit upright, with her head hanging down the side, crying in distress.

“This continued for five months and her parents were threatened that if B didn’t progress, she’d be transferred to a psychiatric unit or placed in foster care.”

It was only when the girl’s parents sought the intervention of the secretary of state, that the girl was allowed home and removed from the ‘at risk’ register.

Suspension of controversial therapies

Ms Monaghan, who also called for the suspension of controversial Graded Exercise Therapy and Cognitive Behaviour Therapy as recommended treatment programmes, added: “A firm diagnosis of ME protects the child from these proceedings but unfortunately paediatricians are often reluctant to give this – simply because they do not understand the condition – which leaves the child open to social service intervention.

“This is a national disgrace and needs urgent action. Children who are already blighted by ME must not be subjected to this trauma.”

Improving medical education

Steve Brine, parliamentary under-secretary for health, responded to the debate, saying that, “The Government do not for one-minute underestimate ME.”

“We know that the condition has a devastating impact,” adding, “we cannot for one minute begin to understand what it must be like to suffer from this condition.”

Mr Brine said nobody with ME should ever “be fobbed off by the medical profession.” He said that before the debate he had spoken with the chair of the Royal College of GPs – Prof. Helen Stokes-Lampard – and will organise a future discussion on improving medical education and awareness.

“The NICE guidance is clear on a number of important points. There is no one form of treatment to suit every patient; that is self-evident. The needs and preferences of patients should absolutely be taken into account. Doctors should explain that no single strategy will be successful for all patients, which is a hallmark of this condition.

“In common with people receiving any NHS care, ME patients have the absolute right to refuse or withdraw from any part of their treatment; nobody is making this happen. Those with severe symptoms may require access to a wider range of support, managed by a specialist.”

Research funding

On the subject of research funding for ME, Mr Brine said that it wasn’t the Governments responsibility to allocate specific funding, and that the problem lay with the quality of research applications.

He said, “The truth is – sometimes it is a hard and inconvenient truth to hear—there have not been good enough research proposals in the ME space, partly because of the stigma and partly because of the division in the medical community. We need people to come forward with good research proposals in this space; that can only be advantageous.”

In closing, Mrs Monaghan replied that, “On the question of medical research, I am sure that many researchers will have heard what he said. However, it is notable that although there is some excellent biomedical research going on just now, it is being funded by charities, and not by the Government. The Government need to take this seriously.”

The ME Association

The ME Association is at the forefront of improving access to care, treatment and research and removing the disease’s stigma.

Despite being recognised by the World Health Organisation as a neurological disease, and a report from the Chief Medical Officer of Health calling for more research and a network of hospital-based clinics, many doctors still don’t know how to diagnose and manage ME/CFS and lack or research means that we still don’t have any effective forms of treatment.

Dr Charles Shepherd, the charity’s medical adviser, added: “There are major problems with both undergraduate and postgraduate medical education on ME.

“Undergraduate education on ME is inadequate, or even non-existent, in many medical schools.  So, doctors are qualifying knowing little or nothing about the diagnosis or management of ME and without ever seeing a patient with ME. This is particularly so in medical schools where there is nobody carrying out research, or a clinician seeing patients with ME.

“Continuing lack of medical education means that many doctors in primary care/general practice are then unsure about how to make a diagnosis (leading to a late or misdiagnosis) and/or being unable to provide guidance on even basic aspects of management.

“This is a completely unacceptable situation for a disease that is twice as common as multiple sclerosis and where a new report has estimated that is costing the UK economy around £3.5 billion in lost taxes, healthcare and benefit costs.”

The motion was passed unanimously:

“That this House calls on the Government to provide increased funding for biomedical research into the diagnosis and treatment of ME, supports the suspension of Graded Exercise Therapy and Cognitive Behaviour Therapy as means of treatment, supports updated training of GPs and medical professionals to ensure they are equipped with clear guidance on diagnosis of ME and appropriate management advice to reflect international consensus on best practice, and is concerned about the current trends of subjecting ME families to unjustified child protection procedures.”


Comment on the Debate

Dr Charles Shepherd, Hon. Medical Adviser, ME Association

“Overall, I thought it was an excellent debate and although the House of Commons chamber looked rather empty at times, it is quite an achievement to get around 40 MPs to attend a backbench chamber debate for 90 minutes at the end of Thursday afternoon – when most are heading home to their constituencies.

“Carol Monaghan made an excellent opening speech which was followed by shorter speeches from over 20 MPs.

“MPs from all political parties made very similar points covering all the key concerns that have been put to them by the Forward ME Group in our briefing document – lack of medical education, need for biomedical research, NICE recommendations on CBT and GET, the PACE trial etc.

“Most MPs also referred to personal issues that had been raised by their constituents – some of which very clearly illustrated the need for an urgent change of attitude by some sections of the medical profession.

“A number of MPs made very thoughtful contributions (e.g. Nicky Morgan, Ben Lake, David Drew, Dr Phillipa Whitford) and others spoke with real passion (e.g. Stephen Pound).

“And while ministerial responses tend to be disappointing when it comes to actual action, I think that Steve Brine, Minister for Health, had clearly got the message about education, lack of biomedical research, bad management etc and that he will be talking to his advisers and colleagues about the points that were being made.

“One specific ministerial action, which is clearly going to happen, is a meeting with the President of the Royal College of General Practitioners to discuss GP education – which can obviously follow up the work that the Forward Group have been doing with the RCGP.

“So, a big thank you to Carol for securing this debate; thanks to all the MPs who turned up and spoke, and thanks to everyone who wrote to their MP to ask them to attend.

List of MPs who took part in the debate – in order of speaking:

1.      Carol Monaghan – SNP – Glasgow NW 2.      Ben Lake – Plaid Cymru – Ceredigion
3.      Sir David Amess – Con – Basildon 4.      Liz Twist – Lab – Blaydon
5.      Adrian Bailey – Lab – West Bromwich 6.      Nick Symonds – Lab – Torteen (Wales)
7.      Nicky Morgan – Con – Loughborough 8.      Liz McInnes – Lab – Haywd & Middleton
9.      Kevin Foster – Con – Torbay 10.   Patricia Gibson – SNP – Ayrshire & Arran
11.   Emma Lewell-Buck – Lab – South Shields 12.   Darren Jones – Lab – Bristol North West
13.   David Drew – Lab – Stroud 14.   Mohammed Yasin – Lab – Bedford
15.   Stephen Kerr – Con – Stirling 16.   Jim Shannon – DUP – Strangford
17.   Kelvin Hopkins – Ind – Luton North 18.   Dr Phillipa Whitford – SNP Health
19.   Stephen Pound – Lab – Ealing North 20.   Sharon Hodgson – Shadow Health
21.   Karen Lee – Lab – Lincoln 22.   Steve Brine – Health Minister
23.   Carol Monaghan – Concluding remarks  

A number of other MPs – Justine Greening, Con, Putney, Julian Lewis, Con, New Forest East, Paula Sherrif, Lab, Dewsbury – made interventions. NB:  There were other MPs in the chamber for all or part of the debate but did not take part. See Hansard Volume 653.

The ME Association

Please help us continue our work

Please donate – whatever you can afford – to help us continue with our work to make the UK a better place for people with M.E. Just click the button below to visit our JustGiving page:

Or why not join the ME Association as a member and become a part of our growing community? For a monthly (or annual) payment you will not only be helping to keep us doing what we do best, but will receive our exclusive ME Essential magazine.

 

 



from ME Association
https://www.meassociation.org.uk/2019/01/parliamentary-debate-kids-being-taken-into-care-by-medics-who-refuse-to-believe-me-is-real-25-january-2019/

from https://www.meassociation.org.uk

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Thursday 24 January 2019

Magical Mystical Nuummite Meaning & Use: Known As The Sorcerers Stone

Nuummite

Nuummite has deep potent earth energy, helps you master mystical and magical ability, develop psychic vision and your intuition. Brings good luck, more coincidences and synchronicity, aids manifestation.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/nuummite.html

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spiritualseeker77: LMAO!! 😁 | Spiritual



spiritualseeker77:

LMAO!! 😁



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spiritualseeker77: Protection for Empaths: Healing frequencies... | Spiritual



spiritualseeker77:

Protection for Empaths: Healing frequencies to strengthen your energy field - Many FREE audios to try!

Learn more & get the free app at http://onelink.to/pjmmu7 😀😀



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Wednesday 23 January 2019

Soul Star Chakra Stones Enhance Divine Love, Enlightenment & Ascension

Selenite

Work with Soul Star Chakra stones from the list to aid spiritual growth, Divine love, enlightenment & ascension. Situated a hand width above the top of the head, it's also called the Seat of The Soul or the Eighth Chakra.



from Healing Crystals For You Blog
https://www.healing-crystals-for-you.com/soul-star-chakra-stones.html

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Tapping with a Skeptic

I know that tapping on parts of your body may seem weird.

I know that talking about all this “negative stuff” seems counterintuitive to anything in the “self-help” field.

And I know it’s a seriously far stretch to believe that doing these things together can make a very real pain in your body disappear, or promote weight loss, or even allow something SO outrageous to take place like attracting money into your life…

But it DOES!

At some point in our not-so-distant past, it was also impossible to believe that man could fly in the sky, and space travel (or even just simple rockets) were considered science fiction up until the 1940s.

Now, they are considered commonplace in our modern lives, and like airplanes, have even become a necessity.

So how are all these things related?

Knowledge. It took knowledge of aerodynamics to crack the mystery of flight, and it takes knowledge of the body’s physical, emotional, and energetic connections to promote health and abundance.

The ironic thing is, this knowledge has been around for thousands of years already, and meticulously documented in Chinese medicine.

But if you don’t know any of this, it’s easy to be skeptical of Tapping, and some people just need to experience it to believe it.

Here’s an amazing video from one of my stage talks where you’ll see a skeptic tap on pain (and release it!) right before your eyes.

This video is also a great example of how Tapping can still work, even if you don’t believe in it.

So for the next skeptic you come across, share this video with them and see if it encourages any shifts for them to give it a try themselves. 🙂

Until next time,

Keep Tapping!

Nick Ortner


Were you once a Tapping skeptic? What changed? Comment below!

The post Tapping with a Skeptic appeared first on The Tapping Solution.



from The Tapping Solution
https://www.thetappingsolution.com/blog/tapping-with-a-skeptic/

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#EFT #holistic #healing

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Sunday 20 January 2019

Were You Born Under The Aquarius Sign?

Amethyst Crystal Pendant

The Aquarius Zodiac Sign starts on the 20th January. If this is your astrological sign take a look at the list of zodiac birthstones for your sign to aid you to discover the best Aquarius birthstone to use to help you.



from Healing Crystals For You Blog
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