Tuesday 31 January 2017

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Check out me latest article: reiki and healing the community...



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The Real Risks Of Educational Apps And Screen Time

Growing up, I don’t really recall having limits on screen time. And educational apps didn’t yet exist. I watched hours of television after school – General Hospital, Little House On The Prairie, Roseanne, and You Can’t Do That on Television. I can still sing jingles for commercials from breakfast cereal to refreshing bars of soap. I played Super […]

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Join me every Thursday and Saturday @devaomboutique for...



Join me every Thursday and Saturday @devaomboutique for #wombblessing and #wombhealing The Womb Blessing Attunement (Female Energy Awakening)it opens women more deeply to the divine feminine, raises your vibration, awakens blocked or dormant aspects of your four female archetypes, and opens you to increasingly to embody your original and authentic femininity. Brings love, harmony, and self-empowerment to your true cyclic nature. It is a personal transformation to return to a more original and free form of femininity.It is a path of self development and spiritual development and an awakening of our authentic female nature.The womb blessing path helps women with or without a womb or a cycle to grow in self acceptance, self-love and empowerment and to express the beauty of their authentic femininity and walk their soul’s purpose in the world.Each awakening builds on the previous awakenings creating a journey of self-realisation and personal growth and development.
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Crystals Stones: #Crystals ~ Using Yellow Crystals. - Crystals


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5 Things I Wish I Did When Dating an Addict

“Don’t let people pull you into their storm. Pull them into your peace.” ~Kimberly Jones

I was finally in a solid place when I met my now-ex-boyfriend earlier this year. I had created some healthy habits for myself and was fully recovered from the eating disorder that had ruled my life for eight years prior.

Things had turned around completely for me, as now I was getting my first novel published and had a flourishing greeting card line.

When I first met my ex, who I’ll call Alex, it was love at first sight. I was completely infatuated with this talented individual from Seattle who made beautiful paintings and music. The art he made truly resonated with my soul, and he could say the same thing about my writing.

Needless to say, it felt like a match made in heaven. So after our courtship, I was more than willing to move up to Seattle from Los Angeles and live with him.

I was heartbroken when four months into living together, he revealed he was addicted to meth. He admitted that he’d been addicted the past two and half years and had been using every day up to five times.

I was blindsided, stunned, and overwhelmed with a twister of emotions. How could I have not known? I scolded myself. He was always hyper and created much more art in such a short time frame than I’d ever seen any other human do.

Well, they say hindsight is 20/20. I didn’t know he was on meth because I didn’t know what signs to look for, and I’d personally never tried meth myself.

When Alex admitted this to me, I cried in fear, certain that our lives would change for the worst. I knew this betrayal of trust would be difficult for me to recover from, as I became vigilant at his capacity for dishonesty.

I also worried that he wouldn’t love me the same after he quit meth and that the only reason that he’d fallen in love with me so easily was because he was high! But I had already invested so much in this relationship, moving states and all. I wasn’t ready to just throw what we had away.

It was ironic because I remembered feeling so happy that I had met him when I was in a “good place” in my life, but all of that seemed so distant now. We can all morph into the worst versions of ourselves when we become clenched in fear.

When Alex was in the process of attempting to quit, it became difficult to detach myself from the turmoil he’d ooze every evening.

Like clockwork, every night around nine, he’d get this vacant look in his eyes and begin to pace around. It was like a dark cloud had come over him and I wasn’t even there anymore. I began to feel that I wasn’t enough for him.

The love I had for him and the idea of us kept me in that relationship for several months after the revelation about his addiction, and I eventually realized why Alex had admitted his meth use to me. He thought he could rely on me to be the “strong one” in the relationship, since I was sober, but in actuality, I was just as fragile as he was.

And I felt too awkward setting boundaries for this recovering addict, afraid he’d feel infantilized or patronized every time I questioned him about his drug use or nagged him to stop. I felt like I lost myself again, when just months before I was so certain about my identity.

Alex continued to relapse for the next six months, never staying sober for more than a few weeks at a time, and I began to feel extremely helpless.

Those fits of restlessness and angst that overwhelmed him every night felt too close to home, and just like him, I had yet to master how to tolerate those uncomfortable feelings.

Some evenings I found strength in myself and was able to tolerate the uncomfortable emotions he was experiencing without reacting. Other nights, we’d get into fights when he’d want to go on a “drive” (buy meth).

This lovely relationship we once had devolved to one of raw, dark emotions that neither of us really knew how to get a grip on. And worst, we both relied on the other person to get it together!

Eventually, despite the fact that I loved this man with all my heart, I knew I had to set myself free from this relationship. I had enough insight to know that even though I’d recovered from my eating disorder, I still wasn’t strong enough to resist getting pulled into his troubled psyche. I needed to pull back to create my own peace again, because I sure as hell wasn’t going to get it from this guy.

It’s been about a couple of months since we’ve been officially broken up and I’ve moved back to Los Angeles to live with my family.

Many days I have guilt and regrets for leaving and not being able to help him out of his addiction. It was like all of the meaningful talks we had, trips to the psychiatrist, and meditative walks in nature were for nothing. In all honesty, I felt pretty useless to his recovery.

In retrospect, I know I would have done things differently if I knew the things I know now. Here’s what I wish I would have done as soon as I found out I was dating an addict:

1. Encourage him to get help

When he first revealed he was addicted to meth, I could have been honest and told him I had no clue what to do and somehow convey the depths of helplessness I felt. Then I would have pointed him to  professional support sooner so that I wouldn’t take his relapses so personally.

2. Get support for myself

I should have attended Al-Anon meetings and attempted to have my own support group in Seattle instead of letting anxiety take such a strong hold over me and then isolating myself from meeting new people.

3. Take good care of myself

I should have made time every day to reconnect with myself in some way, whether it be meditation, exercise, or prayer. I should have taken time every day to reflect on my own journey and the progress I’d made instead of becoming so fixated on helping him with his.

4. Set clear boundaries

I wish I had clearer boundaries for myself going in so that I didn’t stay as long as I did and watch the love we had sour. For instance, it would have been more helpful if I told myself that if I saw him using while we were together, I would have distanced myself from him.

I could have communicated this to him, as well, by saying something like “I’m all for your recovery and supporting you through your journey. But using drugs while being together is unacceptable to me, and if I find out you are using, I will have to distance myself from you for my sake.”

Setting boundaries earlier on may have prevented my unintentional enabling, which created behaviors in him that I later resented.

5. Prioritize my own happiness

I shouldn’t have let guilt keep me in a relationship that was making me unhappy. Like many others, I felt pretty paralyzed by fear of hurting the other person. I wished I had more strength to leave this person I was in love with because he was so self-destructing and refusing to really help himself.

As one can surmise, these are all lessons and wisdom you gain after an experience like this, not before, but perhaps they will be helpful to someone who’s right now standing where I once stood.

Now I am taking time to find peace in myself every day so that I am better equipped to handle another person’s baggage (because we all have it) the next time I attempt to date.

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About Monica Viera

Monica Viera is a novelist that lives in Los Angeles, California. She is best known for her novel Crazy Meeting You Here and the website she’s created, partnersofaddicts.com, which provides resources for those who are in a committed relationship with a recovering addict.

Get in the conversation! Click here to leave a comment on the site.

The post 5 Things I Wish I Did When Dating an Addict appeared first on Tiny Buddha.



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Epidote Improves Relationships, Brings Abundance & Prosperity

Epidote is a catalyst for change, as it emphasizes dominant traits and aids you to raise your vibration to help you become better. Dream Quartz is Epidote and Actinolite in quartz.

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Monday 30 January 2017

Calcite Crystals Amplify Energy Flow & Aid Mental Expansion

Calcite Crystals are easy to get in a range of colors. They cleanse you & your environment of negativity, amplify energy flow, boost mental energy & can improve your memory. Benefit you in many ways.

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This weeks schedule!! #spiritual #spiritualhealing...



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See you this Saturday @devaomboutique with @mayzara_chavarria...



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5 Life-Changing Realizations About Fear and Anxiety

“Fear is inevitable, I have to accept that, but I cannot allow it to paralyze me.” – Isabel Allende

I was lying on the sofa in my tiny flat in Vienna.

My feet were elevated on a cushion and the room was spinning in a brisk waltz around me. My stomach was cramping and cold sweat was trickling down my spine. I gasped for air whenever choking fear forced my racing heart to skip a couple of beats.

The situation was all too familiar.

Back then I suffered from generalized anxiety disorder and social anxiety. I was also plagued by severe toilet anxiety, which is a fear of needing the toilet when none is available. As a consequence, I had panic attacks several times a week.

So, I knew exactly how to stop the agony. I fumbled for the phone and dialled my friend Eva’s number.

“I am sorry,” I said. “I must have caught some kind of bug; I’m quite unwell. I will have to cancel for this evening…I know! It is a shame. I was so looking forward to seeing you again and meeting your friends…Yes, next week would be lovely! I’ll be in touch!”

As I hung up, a welcome wave of relief washed through my body as the panic slowly subsided.

I would have loved to see the conclusion of the Lord of the Rings trilogy on the big screen.

But what if no aisle seat would have been available? What if I would have had to sit in the middle of a row and needed the bathroom? What would the other people have thought if I squeezed past them, profoundly apologizing, while ruining their movie experience?

Furthermore, I had never visited that particular cinema before. I would have to take the underground at night. What if I was mugged? And I had never met the two friends Eva planned to bring along. What if they thought I was a bore or a jerk for needing the loo every ten minutes?

I was convinced I had made the right decision. I would just stay on my sofa, watch comforting repeats of Friends and be safe.

No fear, no anxiety, no panic. All was well again.

Until it hit me.

I was a hostage of my fear! It dictated what I could and couldn’t do. It confined me to my comfort zone and denied me dreams and aspirations.

I was never free to pursue fun adventures or meet new people. I was handcuffed to my sofa, my familiar daily routine and the nearest toilet facility.

And when I attempted to escape, I was hit with a merciless panic attack that left me stunned and shivering back where I was safe. On my sofa, in my little flat. Right where I sat in the dark on a December evening in 2003 and wept.

For being a victim, for being a prisoner, for being weak and scared. For not having a life.

And it was right there on that little sofa that I decided I had enough. I would take control over my life, I would claim the right to choose. I would finally live.

It was a long journey. A lot has changed since then.

And I want to share what I have learned in the past thirteen years.

Because for me, overcoming or defeating my fear was impossible. It always fought back with a vengeance. I had to find a different solution.

Realization #1: Fear is not the enemy.

After that life-changing December evening, I started to research. I read countless books, took courses, and attended seminars. I needed to know what caused the constant fear and how to stop it.

I had always perceived fear as a menacing, painful, and crippling hostile force. A life-sucking alien parasite. An uncontrollable beast.

But I soon discovered that fear can be both healthy and pathological.

Healthy fear is a vital physiological reaction that has guaranteed survival of animal species for aeons.

When confronted with a dangerous situation, adrenaline and other hormones accelerate breathing and heart rates. Blood pressure increases, muscles tense up, and blood is redirected to the arms, legs, and brain. The body prepares for fight or flight, to either combat the threat or flee from it.

A healthy fear response lasts as long as the dangerous situation that provoked it persists. It then subsides until the next trigger restarts it.

However, when fear is triggered by generally harmless events like a trip to the theater, meeting new people, or a car journey, it becomes pathological. The fear designed to save your life is now destroying it.

But why was I terrified of so many innocent situations that other people wouldn’t waste a thought on? What had gone wrong?

Realization #2: My pathological fear was linked to low self-worth.

I soon realized that my anxiety and panic attacks were a direct result of my lack of self-worth.

You see, when you suffer from low self-worth, the world becomes a menacing place.

Subconsciously, you believe that you don’t deserve happiness, so you constantly expect a catastrophe. You are terrified of the future because devastating tragedies happened to you in the past and you were too powerless to prevent them.

You feel under constant pressure to outperform, impress, and achieve perfection because you don’t feel worthy of other people’s love and respect. Yet, you mistrust your abilities and always feel that you are lagging behind or winging it. And you are horrified people might uncover your darkest secret, that you are a fraud.

Hence, you incessantly agonise about making mistakes and worry that other people might disapprove of you and your actions. You don’t believe in yourself and your ability to cope with life. So, you doubt your decisions and fear the potential consequences. And you are paralyzed by the thought of any change.

You feel overwhelmed, stressed, cornered. You perceive your whole life as a threat. Fear and anxiety have become permanent features.

Because you believe that you aren’t good enough in other people’s eyes. Because you don’t know that you actually are worth personified. Inherently, infinitely, and unconditionally so.

You are worth, even if you aren’t a fun socialite who makes friends easily. You are worth, even if life overwhelms you sometimes. And you are still worth even if you pee yourself in public, because as embarrassing as it may seem, it doesn’t change anything about your true worth!

I must have repeated the affirmation “I am worth” several hundred times a day for months. I now knew that, if I wanted to beat my fear of life, I first had to believe in myself. Only then would I feel confident enough to deal with everything that came my way.

Realization #3: I feared fear itself.

Once I started healing my low self-worth and gaining trust in myself and my abilities, it became clear that I wasn’t actually terrified of the movies, strangers, or my overactive bladder alone. I was also horrified of fear itself and all its unpleasant consequences.

Have you ever had a panic attack? It sucks!

And it is terrifying in its own right. The heart palpitations, the shortness of breath, the tight chest. You feel like your death is imminent and you are powerless to prevent it.

So, you avoid the panic triggers. The problem is that when your main trigger is life itself, you cease to live.

You minimize social interactions, you stop making bold plans for the future, you stick to your daily routine that keeps you safe. Your thoughts revolve around your fears and how to keep them subdued. You cohabitate with a fearsome beast, tiptoeing around it so it doesn’t awaken and swallow you whole.

This was my life, constantly and unrelentingly. Until one day I decided to slay the beast.

Realization #4: Fighting the fear made it worse.

Every time I felt fear arising, I cursed it, screamed at it, and commanded it to leave now and never come back. But my beast didn’t take these insults lightly. It defended itself and the panic attacks escalated in frequency and intensity.

I felt like a pathetic failure. I wrecked my mind for new ways to overcome the fear. I tried what felt like hundreds of techniques and tactics to battle the fear. But they never worked and the fear increased at an alarming rate.

I know now that the fear multiplied because I focussed on it. My attention was zoomed into my fear and how to defeat it, and so, subconsciously, I produced more and more of it.

The beast grew and I was about to surrender myself to be its prisoner for the rest of my life.

Until my mum rescued me.

Realization #5: Making friends with fear disarms it.

“Why don’t you name it?” she said.

I was stunned.

“You have tried to fight it,” she continued. “Maybe it’s time to befriend it. Talk to it. Tell it that everything will be okay. Let it know you are there for it. And listen to its concerns.”

I thought the idea was ridiculous. But I was willing to try anything. I was desperate.

So, I named my pathological fear Klaus. It was the first name that popped into my head.

For a while I just observed what he had to say. He was a deeply troubled individual. So insecure, so worried, utterly paranoid.

Then, one day, I started to reason with him.

If he said, “I don’t think we should try a new restaurant. We might hate the food. And it is change. Change is bad for us,” I replied. “Change is good, it makes life fun. And if we don’t like the food, we just order something else next time.”

Of course I felt bonkers for talking to my fear like it was a small child. After all, I was talking to myself (not out loud, mind you)!

But it worked! Klaus understood. He was open to the suggestion that life as a whole wasn’t dangerous and began to embrace the new paradigm.

All he had ever wanted was to help me and keep me safe. He was a true friend. Even if he had been slightly misguided in his efforts to help, I found he was open to change.

Almost ten years later, while I studied Eckhart Tolle’s teachings, I understood that by naming my fear I had stopped identifying with it. I felt the emotion, but I no longer was the fear. The fear didn’t define me and I could finally start to free myself from it.

A Life Without (Pathological) Fear

Klaus and I spent several years together. He would warn me, raise doubts, and advise caution whenever I stepped out of my comfort zone.

But I was determined. I kept reminding myself that I was worth, that I was able to cope, that I was strong.

I started to do one scary thing a day. Small things at first. A different route to work, going for a walk without immediate toilet access, or asking a complete stranger for the time.

Klaus wasn’t happy. But I continued to explain that we were okay. That change was a positive part of life, that the world was a safe place and that we deserved to be happy.

After a while, his objections became less frequent and he remained quiet for longer periods of time.

And finally, in June 2008, as I boarded a plane to Barcelona to present at an international conference in front of hundreds of strangers, I realized he was gone. Without notice, he had left and I wasn’t scared of life’s experiences any longer. The pathological fear of life itself had dissolved.

I still sometimes fondly remember my friend Klaus. But I never heard from him again. I hope he is well.

As for me, I moved to the UK by myself and met new friends (who didn’t think I was a jerk). I am married and have a lovely little daughter. I travel, work with clients, and lecture students without worrying or overthinking.

The cold sweats, anxiety, and racing heart of a panic attack are now a distant memory. And I can enjoy a family day out without obsessing over the location of the nearest toilet.

I finally live, liberated, on my terms. I am free.

And I sincerely hope that my story will help you claim your own life. Because you deserve happiness too.

Stop beating yourself up, befriend your fear, and believe in yourself! I know you can do it!

You are worth!

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About Berni Sewell

Dr Berni Sewell, PhD is a health scientist, energy healer and self-worth blogger. She is on a mission to make you feel good about yourself, no matter what. Download her free guide “Instant self-worth: an easy 4-step solution to heal your self-worth in under 5 minutes a day” and start to boost your confidence today.

Get in the conversation! Click here to leave a comment on the site.

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Sunday 29 January 2017

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Shiva Lingam Increase Vitality & Pranic Energy

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Use Celestite To Contact Guardian Angels & Develop Psychic Ability

Blue Celestite is calming & uplifting, balances energy, aids contact with guardian angels in the celestial realm. Develop psychic gifts of prophecy, clairaudience, clairsentience & clairvoyance.

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Saturday 28 January 2017

Five days of embodying the blessing day 4!...



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Use The 7 Laws of Attraction With Crystals To Manifest

Did you know that using the 7 Laws of attraction combined with specific crystals can help you to manifest a better life? Learn how these laws work to manifest an increase in wealth & happiness.

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Friday 27 January 2017

A small bronze Buddha

This small bronze Buddha (16.8 cm) is probably one of the earliest iconic representations of Shakyamuni from Gandhara.

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Chrysocolla Aids Heartfelt Communication, Goddess Energy

Chrysocolla embodies loving Goddess energy, creates truthful loving communication. A teaching stone with an empowering energy that relieves stress, guilt and fear and brings emotional healing.

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Video: How to Transform Grief and Heal Emotional Trauma

Box in rain

If you've ever suffered from depression, anger or any other emotional blockage in your life, watch this episode. We booked a session with renowned counselor and healer Dr. Deb Sandella, founder of the Rim Institute and author of Awakening Power, Releasing the Inner Magician and Goodbye Hurt and Pain. Using a unique approach combining the best of traditional psychotherapy and energy healing to create a sacred road map that bypasses logic and gets to the heart of lingering pain, Dr. Deb helps her clients shift their total body experience, alleviate suffering and manifest success.

On this episode, we see how Dr. Deb worked with Michael to confront overwhelming feelings of pain and grief from losing his mother. In just one session, she helped him address and resolve painfully intense emotions and bring his body, mind and spirit back into balance, wholeness and peace.

Courtesy of Conscious Living TV


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Five days of embodying the blessing. Day 3. #divine #miami...



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Love your cycle! Love your self! #loveyourcycle #divinefeminine...



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Fanfare for charity’s plans for ME/CFS centre of excellence in Norwich | BBC Look East | 27 January 2017

The BBC Look East news programme last night highlighted plans by the research charity, Invest in ME, to promote the campus of the University of East England at Norwich as a centre of excellence for biomedical research into ME/CFS.

The programme featured hopes for a breakthrough treatment using a frequently used cancer drug, rituximab, which is being trialled in Norway. The presenter said it was hoped to stage a crowd-funded clinical trial of the drug at the Norfolk and Norwich Hospital by the end of 2018 – using patients recruited through the local ME/CFS service.

Professor Øystein Fluge, from Haukeland University Hospital in Bergen, Norway, who was interviewed while visiting Norwich, leads on the rituximab research. He was one of two scientist interviewed, together Professor Simon Carding from the Institute of Food Research at Norwich who has a deep interest in the impact of the microbiome on ME/CFS.

Also appearing in the five-minute programme were two people with the illness – Rosalind Amor (25), who has had ME since the age of eight, and Charlotte Scase, who has been affected for the last 10 years.

Jan Hansen recorded the item on YouTube and BBC Look East kicked off their show last night with the story.



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TGI Friday! Our weekly round-up of recently published research abstracts | 27 January 2017


A large number of published studies have come to light this week. This is s selection from them. We shall publish more in our Friday summary next week.

From Archives of Disease in Childhood Online (open access), 19 January 2017.

Natural course of chronic fatigue syndrome/myalgic encephalomyelitis in adolescents

Tom Norris (1,2), Simon M Collin (1,2), Kate Tilling(2), Roberto Nuevo(3),
Stephen A Stansfeld(4), Jonathan AC Sterne(2), Jon Heron(2), Esther Crawley(1,2).
1) Centre for Child and Adolescent Health, University of Bristol, Bristol, UK
2) School of Social & Community Medicine, University of Bristol, Bristol, UK
3) CIBER Epidemiología y Salud Pública (CIBERESP), Instituto de Salud Carlos III, Madrid, Spain
4) Wolfson Institute of Preventive Medicine, Queen Mary University of London, UK

Abstract

OBJECTIVE

Little is known about persistence of or recovery from chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in adolescents. Previous studies have small sample sizes, short follow-up or have focused on fatigue rather than CFS/ME or, equivalently, chronic fatigue, which is disabling. This work aimed to describe the epidemiology and natural course of CFS/ME in adolescents aged 13–18 years.

DESIGN

Longitudinal follow-up of adolescents enrolled in the Avon Longitudinal Study of Parents and Children. Setting Avon, UK.

PARTICIPANTS

We identified adolescents who had disabling fatigue of >6 months duration without a known cause at ages 13, 16 and 18 years. We use the term ‘chronic disabling fatigue’ (CDF) because CFS/ME was not verified by clinical diagnosis. We used multiple imputation to obtain unbiased estimates of prevalence and persistence.

RESULTS

The estimated prevalence of CDF was 1.47% (95% CI 1.05% to 1.89%) at age 13, 2.22% (1.67% to 2.78%) at age 16 and 2.99% (2.24% to 3.75%) at age 18. Among adolescents with CDF of 6 months duration at 13 years 75.3% (64.0% to 86.6%) were not classified as such at age 16. Similar change was observed between 16 and 18 years (75.0% (62.8% to 87.2%)). Of those with CDF at age 13, 8.02% (0.61% to 15.4%) presented with CDF throughout the duration of adolescence.

CONCLUSIONS

The prevalence of CDF lasting 6 months or longer (a proxy for clinically diagnosed CFS/ME) increases from 13 to 18 years. However, persistent CDF is rare in adolescents, with approximately 75% recovering after 2–3 years.


From E-Cronicon Neurology (open access), 19 December 2016.

Identifying Key Symptoms Differentiating Myalgic Encephalomyelitis and Chronic Fatigue Syndrome from Multiple Sclerosis

Diana Ohanian, Abigail Brown, Madison Sunnquist, Jacob Furst, Laura Nicholson, Lauren Klebek and Leonard A Jason*
DePaul University, Chicago, USA
Correspondence: Leonard A Jason, DePaul Unicversity, Chicago, USA

Abstract

It is unclear what key symptoms differentiate Myalgic Encephalomyelitis (ME) and Chronic Fatigue syndrome (CFS) from Multiple Sclerosis (MS).

The current study compared self-report symptom data of patients with ME or CFS with those with MS. The self-report data is from the DePaul Symptom Questionnaire, and participants were recruited to take the questionnaire online.

Data were analyzed using a machine learning technique called decision trees. Five symptoms best differentiated the groups.

The best discriminating symptoms were from the immune domain (i.e., flu-like symptoms and tender lymph nodes), and the trees correctly categorized MS from ME or CFS 81.2% of the time, with those with ME or CFS having more severe symptoms.

Our findings support the use of machine learning to further explore the unique nature of these different chronic diseases.


From BMJ Open, 13 January 2017
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Paediatrics Research

Children’s experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review and meta-ethnography of qualitative studies

Roxanne M Parslow(1), Sarah Harris(2), Jessica Broughton(2), Adla Alattas(1), Esther Crawley(1), Kirstie Haywood(3), Alison Shaw(4)
1) Centre for Child and Adolescent Health, School of Social & Community Medicine, University of Bristol, Bristol, UK
2) Department of Psychology, University of Bath, Bath, UK
3) Royal College of Nursing Research Institute, Warwick Medical School, University of Warwick, Health Sciences, Coventry, UK
4) Centre for Primary Care Research, School of Social & Community Medicine, University of Bristol, Bristol, UK
Correspondence: Roxanne M Parslow; roxanne.parslow@bristol.ac.uk

Abstract

OBJECTIVE

To synthesisE the qualitative studies of children’s experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME).

DESIGN

Systematic review and meta-ethnography.

BACKGROUND

CFS/ME is an important disabling illness, with uncertain cause and prognosis. As a result, children with CFS/ME can find themselves living with greater uncertainty and stigma, exacerbating the impact of the condition. There is a growing body of qualitative research in CFS/ME, yet there has been no attempt to systematically synthesis the studies involving children.

METHODS

Studies exploring the experiences of children diagnosed with CFS/ME, published or unpublished, using qualitative methods were eligible. MEDLINE, EMBASE, PsycINFO and CINAHL databases were searched as well as grey literature, reference lists and contacting authors. Quality assessment was done independently using the Critical Appraisal Skills Programme (CASP) checklist. Studies were synthesised using techniques of meta-ethnography.

RESULTS

Ten studies involving 82 children with CFS/ME aged 8–18 were included. Our synthesis describes four third-order constructs within children’s experiences: (1) disruption and loss: physical, social and the self; (2) barriers to coping: suspension in uncertainty, problems with diagnosis and disbelief; (3) facilitators to coping: reducing uncertainty, credible illness narratives, diagnosis and supportive relationships and (4) hope, personal growth and recovery. CFS/ME introduces profound biographical disruption through its effects on children’s ability to socialise, perform school and therefore how they see their future. Unfamiliarity of the condition, problems with diagnosis and felt stigma prevent children from forming a new illness identity. Children adopt coping strategies such as building credible explanations for their illness.

CONCLUSIONS

Physical, social, emotional and self-dimensions of life should be included when treating and measuring outcomes from healthcare in paediatric CFS/ME. There is a need for greater recognition and diagnosis of childhood CFS/ME, specialist advice on activity management and improved communication between health and education providers to help children cope with their condition.


From Journal of Neurology and Neurobiology, 10 January 2017.

Assessment of Individual PACE Trial Data: in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Cognitive Behavioral and Graded Exercise Therapy are Ineffective, Do Not Lead to Actual Recovery and Negative Outcomes may be Higher than Reported

Mark Vink*
Family Physician, Soerabaja Research Center, Amsterdam, The Netherlands
*Corresponding author: Mark Vink, Family Physician, Soerabaja Research Center, Amsterdam, the Netherlands, E-mail: markvink.md@outlook.com

Abstract

The PACE trial concluded that Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET) are moderately effective in managing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and yielded a 22% recovery rate. Nonetheless, the recently released individual participant data shows that 13.3% of patients had already recovered, on one or both primary outcomes, upon entering the trial. Moreover, no one classified as recovered achieved the physical functioning, together with the fatigue scores, of the healthy sedentary controls from another trial by the PACE trial‘s lead principal investigator or achieved Kennedy‘s definition of recovery, whereby symptoms are eliminated and patients return to premorbid levels of functioning, due to CBT or GET (alone). Therefore, CBT and GET do not lead to actual recovery.

After CBT and GET therapy, 59% and 61% of participants, respectively were labeled as improvers in the original paper, which was lowered by the PACE trial authors to 20% and 21% in the newly released papers in which they used the original protocol; nevertheless, only 3.7% and 6.3% were objective improvers in the objective 6-minute walk test as defined by the same improvement of 50% or more, as used by the trial itself, to classify someone as an improver. If the effect of Specialist Medical Care had been removed from the analysis, then 0% and 1.3% of patients improved objectively with CBT and GET, respectively. Highlighting the fact that unblinded trials like the PACE trial, should not rely on subjective primary outcomes, but use either objective primary outcomes alone, or combined with subjective primary outcomes, as a methodological safeguard against the erroneous inference of efficacy in its absence.

The objective individual participant data shows that in up to 82.2% and 79.8% of ME patients their health might have been negatively affected by CBT and GET, respectively. The independent PACE trial review had shown that this proportion was between 46% and 96%, and found to be between 63% and 74% by surveys involving more than 3000 patients by the Norwegian, British, and the Dutch ME Associations. These data confirm the conclusions of a number of studies that patient health was negatively affected by CBT and GET, including one that found that in 82% of patients with severe ME their symptoms were made worse by GET. Analysis of the individual participant PACE trial data has shown that CBT and GET are ineffective and (potentially) harmful, which invalidates the assumption and opinion-based biopsychosocial model. Consequently, we should stop using CBT and GET as (compulsory) treatments for ME/ CFS to prevent further unnecessary suffering inflicted on patients by physicians, which is the worst of all harms, yet totally preventable.



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Doing What Brings You Joy Is Not “Wasting Time”

“At any moment, you have a choice, that either leads you closer to your spirit or further away from it.” ~Thich Nhat Hanh

When I was a kid, I wanted to be an Olympic figure skater. Or an artist for Disney. Or maybe a musician.

I wanted to be a songwriter and choreographer.

I made up roller skating routines in the driveway to Tiffany and Paula Abdul. (It was most excellent.)

I filled notebooks upon notebooks with illustrations.

And if you were to ask me to describe myself, I might have said, “happy.” Or I would have chattered on about my dreams and all the interesting things I liked.

Ask me today, and just like any other adult, my automatic response would probably be something along the lines of what I do and how hard I work, as if I’m interviewing for a job.

I’m a psychologist. I’m a hard worker. I’m dedicated.

(Adults aren’t always so good at this.)

Somewhere around junior high, my identity shifted from happy and interested in everything to being studious and serious about everything.  

Until very recently, I wouldn’t have thought to describe myself as joyful, creative, or inquisitive.

Whereas I once thought about doing what fed my spirit, I started thinking about earning potential and prestige. Rather than doing things because they brought me joy, I did them because I was good at them. And things that I wasn’t didn’t make the cut.

This was the time to start getting serious. Win the awards. Get scholarships. Get recognized.

And stop wasting time.

Things got competitive, too. Friends started talking about test scores, then it was talk about college and graduate school and publications and careers.

It was during that time that I also discovered insecurity. I got caught up in not good enough thinking, and I felt like an imposter all the time.

I don’t even think I noticed that I’d forgotten about joy. I’d laugh as I said, “I’ll be happy when…” only to find that there was always another “when” lurking around the corner.

I’d forgotten what we all know as children, that joy is a part of us. It’s not a place you arrive when you finally finish all of this serious business. It’s a piece of you that needs to be nurtured.  

But I didn’t nurture the joy. I let it go because I thought I could live without it. Even the things I did in the name of self-care had lost their joy.

Running, which once left me feeling as free as the wind, became about getting faster and going farther.

Yoga, which was meant to be a grounding and compassionate practice for me, became about sticking that handstand a little longer.

Setting goals isn’t the problem here. It’s just that accomplishments aren’t the same thing as thriving.

Looking back at all of this, I see that I’d made myself so small, I forgot I was in there at all.

Oh, my success more than spoke for itself, but joy? Interests? Excitement? I’d shut them down one by one because I wasn’t good enough or because they weren’t serious enough.  

I stopped drawing.

I stopped making jewelry.

I stopped doing things just because they were enjoyable.

And why? Because I thought I could live without them.

I did everything you’re supposed to do, and I did everything in my power to do it just right. I got into that fancy private school on a full-ride, got the Ph.D., got the license, and got the stable job. And I became so entrenched in this serious, hard-worker identity that I forgot about me.

I’m truly grateful for the opportunities and privileges and people in my life, but as a human being it felt like something was missing. Maybe those things I’d been living without might have been more necessary than I thought.

Little pieces of that happy little girl popped up from time to time, but I’d push them away or turn them into something too perfect.

And then one of those pieces shouted at me so loudly I couldn’t ignore it any longer. I was sitting on the blue mat in my son’s room reading Pete the Cat when it happened.

You should do this. Write a children’s book 

I could almost see myself step outside of my body and look at me in disbelief.

Really? You? Write a children’s book?

I tried to brush it off, but my heart was pounding and I could hardly breathe. I tried to go about my business, thinking this would go away on its own. But it didn’t.

After a lot of back and forth with myself, I finally mumbled the words to my husband, “I think I want to write a children’s book.”

I braced myself for the same look of disbelief I gave myself, but none came.

“You should do it,” he said, apparently not at all surprised.

As much as I’d like to say this was some kind of magical transformation, it wasn’t. I didn’t quit my job and whip out a world-famous, award-winning children’s book. But that’s not the point of this story anyway.

The point is that I found joy again.

It took a while. I thought about it and analyzed it trying to make it disappear. I told myself I didn’t know what I was doing and didn’t have the time.

The thought stuck with me, though, growing louder and louder until, under the cover of darkness in the early morning hours, I pulled a sheet of paper from the printer, sharpened a pencil, and sat down.

Like one of those scenes from a movie when someone who’s had amnesia suddenly remembers their entire life, the memories of all the things I thought I could live without came flooding back.  

Have I really been living without this all this time?

I filled pages upon pages with illustrations.

I made up rhymes and stories.

And do you know what happened? I didn’t just feel joy. I felt free.

I could probably go on living without this, but now I see that I don’t have to.

I didn’t need to quit my job.

I didn’t neglect my children.

The house didn’t crumble at my feet.

Pursuing this didn’t need to make me a cent. I didn’t even need to be very good at it.

Because it was always about joy, and that’s not something I want to live without anymore.

Living with joy doesn’t hurt anything. It doesn’t diminish your drive or ambition. It doesn’t make you less intelligent. And it sure doesn’t make you any less important.

Living with joy makes you free, and that freedom reminds of everything that is possible. Even the serious things.

On the outside, my life probably looks pretty much the same since that night I sat on my son’s blue mat, but on the inside, everything is different.

Since then, I found that little girl that I didn’t even know had gone missing.

I remembered the roller skating routines, designing t-shirt, setting up photo shoots in the living room, and sitting on the edge of my seat holding my breath watching decorating shows.

I remembered what it feels like to be happy and excited and inquisitive.

And now I get it. Just because you can live without something doesn’t mean you have to.  

What piece of joy have you been telling yourself you can live without?

What do you think would happen if you said one day, “I don’t have to live without this?”

You can find that joy, even if that little piece of joy has been buried for a long time.

To begin, start by saying yes to yourself a little more. Yes to that little spark of curiosity, yes to that little smile that you shrug off, and definitely yes to that burning feeling inside your chest that screams, “Listen to this. This is joy.”

It doesn’t matter if it feels ridiculous, it doesn’t matter if it’s “wasting time,” and it sure doesn’t matter if you’re any good at it. What matters is the feeling you get when you do it. Because that feeling like you’re going to laugh and cry and sit silently and run through the halls singing all at once, that’s joy. (And you don’t need to live without it.)

Remember to pursue more than success or accomplishment. Those are important, but so are the things that bring you meaning, connection, and engagement in your life.

Feel the spontaneous moments of joy that seem to bubble up out of nowhere, and plan a few to look forward to. Fill those moments with activities that fill you up. Simply unplugging is not enough when you’re after joy. And above all else, do not cancel on yourself.

As you do this, stay alert for that voice that says you can live without this. Maybe you can, but maybe you don’t have to anymore.

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About Leslie Ralph

Leslie writes at A Year of Happy where she combines her years of training and practice as a psychologist with the lessons she’s still learning as a working mom. Each month, she tackles a new topic inspired by life as a mom, positive psychology, and meditation. Stop by to download your free two-minute revitalizing meditation.

Get in the conversation! Click here to leave a comment on the site.

The post Doing What Brings You Joy Is Not “Wasting Time” appeared first on Tiny Buddha.



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Thursday 26 January 2017

Single Medicine Therapy in Ayurveda

Single Medicine Therapy is a medical practice that uses only a ‘single ingredient’ most of the time, or the treatment is given when there are no other medicines that need...

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Aqua Aura Quartz Is Quartz Bonded With Gold

Aqua Aura Quartz is created by bonding gold with quartz. Amazing high vibration, aids communication, clairaudience, automatic writing and brings emotional healing and spiritual growth.

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An Unusual Way to Soothe Your Nervous System

Woman stretching in bright room

When the strains of life feel unbearable and you feel that the end of your proverbial (or literal) rope has been reached, here’s a simple way to tap into your internal calm.

You’ve likely heard of the two branches of the autonomic nervous system, and even if you don’t know their names, you could recognize them in a heartbeat. These reactive forces within us are either on high alert, or deeply restorative. One of the challenges we face in modern times is learning to manage them.

We are surrounded by potential triggers that light up our protective instincts: multiple dings, bells, global information, instant responses, the list goes on and on. One of the ways that we begin to protect our energy and our health is by learning how to activate our rejuvenating nervous system; the oh-so-lovely sounding rest and relax response. In our drive for forward progress, our culture as a whole has not placed much importance on it.

We now know that it is this place of deep rest where healing happens. Where we find restoration, we find health; inflammation decreases, and many diseases are able to resolve.

Guru Jagat, a Kundalini Teacher and author of Invincible Living, (HarperElixir, 2017), offers a full chapter on strategies for being ‘stress free’, some you are familiar with; spending time in nature to find your rhythm, eating foods that are grounding in nature, and developing a breath practice.

One practice that made me smile for its simplicity, and also because I’m a little ticklish, is the practice of “massaging, stretching, and putting cold water on your armpits’. “The armpits don’t get the attention they deserve” Jagat writes. She offers these tips for using this practice to realign yourself with an activated rest and relax response.

Every morning. Begin strengthening your parasympathetic nervous system by starting each day with a cold shower. When that’s not possible, she says that you can splash cold water on each armpit for 15 seconds. This will help tonify the nervous system.

During the day. When stressful moments emerge, excuse yourself to the bathroom or somewhere private, and gently massage  the inside of your armpits with your thumbs for up to three minutes. This can offer a quick and dramatic shift in how you feel.

Daily practice. A great antidote for the stagnant position of working at a desk or driving, is to hold onto your elbows above your head and stretch your armpits for one to three minutes. Your armpits are home to many lymph nodes; by stretching them, you offer support not just to your nervous system, but also to your immune system.

We get caught in the idea that the practices that will help calm us are lengthy and serious. Paying attention to your armpits feels a little silly, and maybe that’s one of the best things about it. Loosening our grip on being overly serious is another path to relaxation and rest.

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I recommend the book "midnight with the mystic"

Thank you



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Day 2 of five days to embody the blessing!...



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Join me and @mayzara_chavarria February 4th @devaomboutique for...



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#spiritual #healing